Update on my son, prayers still needed, now more than ever
He has had 2 CT scans in the last week. The cyst is still the same and appears not to have changed at all. The docs don't think it is responsible for the pain that he continues to have.
They have him on a pain med that is used to try to control migraines, so far it doesn't seem to be working. He is taking a 10ml dose of Tylenol with codeine ever 6 hours to control the pain, and this really only controls it for 4 hours or so. Since Thursday, he has been having what are called "Thunder Clap" headaches. He may have no pain of a just a small pain brfore they hit and in a second or two the pain is almost unbearable. Some last at that level for 10 minutes and some for just a few seconds.
He has an appointment with a Neurosurgeon this coming Friday, the 20th and we hope to get some answers then. The CT scans both show no tumors, no bleeding, no swelling, nothing that might point to a cause of this pain. They don't have any idea what it is yet and I have been told that they may not find the cause. I can't bear the thought of him having to live life like this. This is honestly tearing me up. I can't sleep. I am exhausted, as is my wife and our son. Obviously he can't sleep well either.
It kills me but the times when the pain subsides he is a perfectly normal 9 year old boy. He laughs and plays, and then we will see him grab his head in pain and we can see the change in his face and I know he is in terrible pain. We took him to the ER Thursday night for one of these it was so bad. The damn Doctor treated us like we were over reacting. After listening to him almost lecture us with his attitude for almost and hour I asked to speak to him in the hall and then I tore into him but good. Maybe I shouldn't have but this is my son and I know what he acts like and I know when he is in pain. I just couldn't listen to his BS anymore about how kids get headaches and usually they are nothing to worry about. He hadn't even listened to us when we told him that this headache had lasted, with brief relief periods, for almost an entire week.
To sum it up everyone, I need prayers for him. As many as you can offer. Please, pray for my son to get well. We really appreciate it.
Thanks for listening to me rant. I just needed to.