This is a discussion on Amyloidosis took my Mom within the Bob & Terry's Place forums, part of the The Back Porch category; Very sorry for the loss of your Mom....
Sorry to hear of your loss. This rings all to close to home. Diseases that doctors don't know about and also don't want to look far enough into because it takes too much time. My wife went through a similar experience with going undiagnosed with Valley Fever (Coccidiomycosis). She ended up losing her right lung and nearly losing her life.
So when the doctor says lets watch it and see what happens. Get a second opinion.
George Washington: "A free people ought to be armed."