Amyloidosis took my Mom

This is a discussion on Amyloidosis took my Mom within the Bob & Terry's Place forums, part of the The Back Porch category; Monday last week, I got the call that my Mom had passed away, She lost her battle with Amyloidosis, It’s a rare disease that is ...

Page 1 of 3 123 LastLast
Results 1 to 15 of 32

Thread: Amyloidosis took my Mom

  1. #1
    Distinguished Member Array 4my sons's Avatar
    Join Date
    Feb 2006
    Location
    Out side of Richmond, VA
    Posts
    1,637

    Amyloidosis took my Mom

    Monday last week, I got the call that my Mom had passed away, She lost her battle with Amyloidosis, It’s a rare disease that is being diagnosed in 8 / 1 Million people. She wasn’t diagnosed until three months ago. The battle began close to three years ago.

    Amyloidosis is hard to diagnosis due to it not having any symptoms of it’s own. It attacks a specific organ, or system, and the indications are what you would commonly see with the failure of that organ. In her case, it attacked her Heart, Kidneys and Lungs all at once.

    For the ones you Love:
    If they are facing a serious illness and the conventional treatments don’t seem to be helping, get a second opinion, and a third or forth if necessary, It may just be an underlying cause. I have to believe that just like a lot of other diseases out there, as it becomes more well known, the number of cases diagnosed will increase dramatically, and everyone will step back in awe of this brand new disease that just came out of nowhere.

    Here is the link to the one site that is working hard to make more and more people aware if this disease, It’s run by a survivor of Amyloidosis.

    Amyloidosis Support Network

    My sister works in the ER at a local hospital, and she nor any of the doctors there had heard of it. Of my mom’s half dozen specialist, only one had heard of it, and he didn’t realize that is what was the problem. It took a CDC type of specialist to figure it out. He only came in as a favor to her Heart specialist.


    Hopefully no one here is facing something like this, or will have to in the future, but maybe this thread will stick with them and help to encourage them to continue to search for any underlying problems that may not have been checked for.
    "fundamental principle of American law that a government and its agents are under no general duty to provide public services, such as police protection, to any individual citizen." [Warren v. District of Columbia,(D.C. Ct. of Ap., 1981)]
    If I have to explain it, you wouldn't understand

  2. Remove Ads

  3. #2
    Lead Moderator
    Array rstickle's Avatar
    Join Date
    Dec 2004
    Location
    Laurel, MD
    Posts
    21,702
    Sorry to hear about your loss.
    Rick

    EOD - Initial success or total failure

  4. #3
    VIP Member Array Bud White's Avatar
    Join Date
    Dec 2004
    Location
    Away - Health Problems
    Posts
    17,353
    I'm Sorry to hear this my thoughts are with your family

  5. #4
    VIP Member
    Array dr_cmg's Avatar
    Join Date
    Feb 2006
    Location
    Alabama
    Posts
    10,811
    I am very sorry to hear about your loss of your mother. My prayers are with you and your family.
    George

    Two things are infinite: the universe and human stupidity; and I'm not sure about the universe. Albert Einstein

  6. #5
    VIP Member Array ELCruisr's Avatar
    Join Date
    Apr 2006
    Location
    Central FL
    Posts
    2,073
    Sorry to hear about the loss of your mother, never an easy thing. My prayers to you and your family.
    If you stand up and be counted, from time to time you may get yourself knocked down. But remember this: A man flattened by an opponent can get up again. A man flattened by conformity stays down for good. ~ Thomas J. Watson, Jr.

  7. #6
    Senior Member Array AirForceShooter's Avatar
    Join Date
    Dec 2004
    Location
    Central Florida
    Posts
    1,155
    I'm so sorry for your loss.
    Losing a Mom is possibly the worst.

    AFS
    Gun control is hitting what you aim at

  8. #7
    Assistant Administrator
    Array P95Carry's Avatar
    Join Date
    Mar 2005
    Location
    South West PA
    Posts
    25,482
    Mike - my condolences to you and the family - it is indeed a very rare condition and IIRC not an easy one to treat even if correctly and early diagnosed. That in itself, as seems the case - pretty difficult too.

    Hold strong in this sad time.
    Chris - P95
    NRA Certified Instructor & NRA Life Member.

    "To own a gun and assume that you are armed
    is like owning a piano and assuming that you are a musician!."


    http://www.rkba-2a.com/ - a portal for 2A links, articles and some videos.

  9. #8
    Lew
    Lew is offline
    Member Array Lew's Avatar
    Join Date
    Sep 2006
    Location
    Wiscasset, Maine
    Posts
    320


    Sorry for your loss.
    There are 2 types of people, victims and the prepared. I choose to be prepared....

    "Bless thee, O Lord, This handgrenade, that it may blow thine enemies to bits. Amen" ~Monty Python's Holy Grail

    My Blazer Website

    My new, Unofficial Cam and Company Fan site.

  10. #9
    Senior Member Array purple88yj's Avatar
    Join Date
    Jun 2006
    Location
    Piedmont Triad, NC
    Posts
    1,100
    Prayers.

  11. #10
    Member Array steve_db's Avatar
    Join Date
    May 2006
    Location
    florida
    Posts
    219
    Sorry for your loss.
    God bless.

  12. #11
    Member Array osanmike's Avatar
    Join Date
    Aug 2006
    Location
    Crestview, FL
    Posts
    397
    Sorry for your loss. You and your family are in my prayers.
    "No man's life, liberty, or property is safe while the Congress is in session."
    Mark Twain
    S&W M&P 40

  13. #12
    Distinguished Member Array dimmak's Avatar
    Join Date
    Feb 2006
    Location
    TN
    Posts
    1,752
    Lost my mother unexpectedly last December, but I have the faith of a reunion one day.....
    Prayers go up for you and your loved ones....
    "Ray Nagin is a colossal disappointment" - NRA/ILA Executive Director Chris W. Cox.


    "...be water, my friend."

  14. #13
    Distinguished Member Array AnimalKracker's Avatar
    Join Date
    Sep 2005
    Location
    Eastern Arkansas
    Posts
    1,382
    Sorry to hear of you loss. You and your family are in my prayers. My mother went through something similar in and out of the hospital, and never finding "the" cause. Her last time she was admitted they came and told us it was cancer and no hope. She passed the next day. And the doctors were besides themselves as they had run tests for this kind of thing just a week or so before and nothing showed up. I hope you can find peace that she is at peace and in no more pain. The ones that are suffering are the ones that are left behind. God bless you and yours, Philip

  15. #14
    VIP Member
    Array falcon1's Avatar
    Join Date
    Jan 2006
    Location
    Tennessee
    Posts
    6,482
    My condolences to you and your family. You are in my prayers.

  16. #15
    Senior Member Array .45acp's Avatar
    Join Date
    Mar 2006
    Location
    Pennsylvania
    Posts
    570
    My prayers go out for you and your family.

    George

Page 1 of 3 123 LastLast

Links

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  

Search tags for this page

amyloidosis second opinion
,

amyloidosis took my mom

,

my mom had amyloidosis

,
my mom passed away amloydosis
,
my mom passed way amyloydosis
Click on a term to search for related topics.