Update on wife and a litte venting (long)
I know some of you here know about what's been going on with my wifes health. She has slid back some more and lost the use of her voice again. Don't know if it will be temporary or permanent, the last time it was over a year I guess. Her intestines still are paralysed so liquids only. Her legs are weakening and her walking is limited to short distances again. Looks like we need to start brushing up on nonverbal communications skills again. Please keep her in your prayers as she is pretty upset about all this again and if there is one thing she really hates it will be if she needs a wheelchair again.
What really chaps my rear end is how people pull away from people with MS, especially at this stage. Heck just the handicapped in general. The stares, talking slow and loud like they can't understand, on and on. She basically has no friends left except a few long distance friends from our past that she keeps up with via e-mail. Even all the local "christians" from churches we've been involved in locally have disappeared. They are uncomfortable with people who are not "normal" I guess, whatever the heck that is.
Family, I don't want to get started. We do have some younger folks who might read this but since my sister in law made the statement "I think it's all in her head" that sort of sums up my family.
At least a few of my shooting friends are around but we seem to be running separate schedules these days. I have to say some guys at the local IPSC club have been fantastic. Their gunsmith has helped me set up two 1911's now and won't let me pay for anything. I've also been given a full Dillon loading setup since they figured I should stop paying full price for ammo. Last trip to the range the manager told me that trip was a freebie, I looked like I needed to blow off steam I guess.
We are still looking to find a live aboard boat. We decided that since her future is such an unknown we might as well make it as happy as we can and we would rather live on a boat than the biggest mansion on land any day. We spent the bulk of our adult lives out there and while far ports won't be reached anymore we'll take what we can get.
Sorry if some of my posts lately have sounded a bit anti-social but my mood hasn't been the best and my tolerance for the foibles of my fellow man are not at an all time high at the moment. When listening to some people bitching about some inanity the other day I wanted to slap 'em up side the head and explain how shallow and stupid what they were complaining about was. But I guess some people have never experienced real trials.
We've gone from living a life most only dream of to my wife being alone and often confined indoors. It was not always fun and often times hard and occasionally dangerous but I find I'd rather be back there any day than facing this. But without me there would be no one left to take care of her and after 25+ years I ain't going anywhere. My wife even offered me an "out" because she knows how hard this is. Most couples with MS in the marriage last less than two years. I may not like it but I love her and will stick it out whatever comes. I guess it's the way I'm made, I would have thought there are more like that but I've been proven wrong before.
So these days she pretty much is at home with her art and while she has lost the ability to do much of what she used to do she still works with polymer clays. I try to create a nice, quiet little world where she can be comfortable despite the horses tail ends of the world around her. If you want to see some of it go to
I think she still has some of her writings there as well.
Ok, I've blown off a little steam and I'll shut up now........