33% wage cut

This is a discussion on 33% wage cut within the Bob & Terry's Place forums, part of the The Back Porch category; I'll try to make this short but no promises. We've been involved in disability 20 years now. During the time we taught Sunday School for ...

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Thread: 33% wage cut

  1. #1
    Senior Member Array Holdcard's Avatar
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    33% wage cut

    I'll try to make this short but no promises.

    We've been involved in disability 20 years now. During the time we taught Sunday School for people with developmental disabilities we agreed to care for a student with severe disabilities. His mom died suddenly 8 years ago and he's been with us ever since.

    We were getting 9 hours per day to care for him. It's been this way for 8 years now and all his support coordinators, doctors etc. have had no issue with our time, in fact ever since he came to live with us we have consistently shown actual care hours between 11-12 hours per day.

    The Department of Developmental Disabilities just reduced our hours from 9 per day to 6. (that's straight time, no overtime). We have chosen to live at this level in order to maintain his health and quality of life. Not getting rich by any means.

    Here's the dilemma, his care is just too intense for him to be left alone and this is well documented. If I go find a job we will not be able to maintain the level of care and we are certain he will deteriorate more quickly.

    Without getting into too deep, it suffices to say his care is intense. He has severe spastic cerebral palsy, moderate mental retardation, asthma, is prone to aspirated pneumonia, and the list goes on.

    At this point we don't have many options. We could give up guardianship and send him to a group home. This is definitely not in his best interest. Our second option is for me to find something that makes good money (or at least enough to replace our loss) that can be done during the 7 hours he's away at his day program.

    About the only thing i can think of is doing photography. I can do it physically (I have my own health problems) and it would allow me to be loose enough with my schedule to meet our guy's needs.

    Please pray for direction, we really don't know what to do at this point.
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    VIP Member Array Patti's Avatar
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    Socialism is the philosophy of failure, the creed of ignorance and the gospel of envy. Winston Churchill

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    Try contacting a few lawyers in your area and find out if anybody would be willing to dispute your case gratis for you.

    That is a genuine heart string tugger.

    Possibly try contacting The DDD and tell them that you are thinking about calling the national news media regarding how this individual that is now in your care will suffer much greater hardship if you are forced to give up your caring guardianship.

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    I'm with QK on this one. The child is the state's responsibility and it is better for him and for the state if you are enabled to care for him.

    The only other comment I have is that in another thread QK talked about the importance of living a life that has purpose outside of ourselves. That should not have to mean that you must go it alone. There are others who are responsible for this child's welfare and they need to step up to the plate.

    Do whatever you must to get the state to meet its responsibility and do whatever you can (within reason) to continue doing your little part to heal the world.

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    Quote Originally Posted by QKShooter View Post
    Try contacting a few lawyers in your area and find out if anybody would be willing to dispute your case gratis for you.

    That is a genuine heart string tugger.

    Possibly try contacting The DDD and tell them that you are thinking about calling the national news media regarding how this individual that is now in your care will suffer much greater hardship if you are forced to give up your caring guardianship.
    All good points, and I would be sure to discuss the matter with an attorney prior to making any other contacts. You don't want to put your foot into your mouth...undertand the possibilities before having discussions with the government. OMO
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    Good advice.
    So much govt money being totally wasted these days.

    Like the House just allocating 5 million a year over the next 5 years to help marine turtles and sea otters.
    Not that I have anything against otters and turtles but, this severely handicapped person could use some additional funding also rather than a cut back.

    It is really a shame to pull money from one place where it is doing actual proved good and directly benefiting an obviously very needful person.

    Quote Originally Posted by retsupt99 View Post
    All good points, and I would be sure to discuss the matter with an attorney prior to making any other contacts. You don't want to put your foot into your mouth...undertand the possibilities before having discussions with the government. OMO

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    Senior Member Array bbqgrill's Avatar
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    I wish I had good advise, all I can say is you are not the Lone Ranger. I am in a similar position; I do industrial sales, my pay is heavily weighted towards sales incentives, this year has been very tough my take home is down down about 40% due to the current economic situation. Hopefully, our situations are only temporary.

    Cheers,
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    Thanks for the responses and advice. We know due to his disability that he could die any time, we're prepared for that. This has taken us off guard. We feel like we're in a catch 22. If I get a job and then he gets sick the state can accuse us of neglect. (Basically, for following their recommendations)

    It would only be a matter of time before he gets sick because of his disabilities. He literally has to be monitored 24 hours per day because he makes poor choices when it comes to health and safety.

    Quote Originally Posted by Patti View Post
    I've looked into this before but I don't think I ever found one I didn't think was a scam. Kind of like selling encyclopedias, they show you their best sales person who makes a bazillion dollars a day for a few hours work. In reality that person is the ONLY person out of a staff of thousands that makes any money at all.

    If you have something to suggest I'm all ears, that would be perfect. Something I could do while monitoring him, that allows the freedom to care for his needs then return to where I left off.

    I have a passion for photography but lack education and experience. If I could made a few hundred dollars a week doing that it would make up for the lost wages. I really want to offer in home photography for people with disabilities as well as pets and service animals. I've heard from several of my clients that it's next to impossible to get an animal into a good photo studio. If I opened any kind of business that would top the list.


    As for speaking to an attorney I'll make some calls. We have been considering this as an option. Unfortunately this is a government entity and is basically 'above the law'. (think ATF, there are some startling similarities).

    Please keep us in prayer that we make the right decisions.

    Thanks,

    Holdcard
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    People first

    Quote Originally Posted by QKShooter View Post
    Good advice.
    So much govt money being totally wasted these days.

    Like the House just allocating 5 million a year over the next 5 years to help marine turtles and sea otters.
    Not that I have anything against otters and turtles but, this severely handicapped person could use some additional funding also rather than a cut back.

    It is really a shame to pull money from one place where it is doing actual proved good and directly benefiting an obviously very needful person.
    Yes it is a shame. Congress and state legislatures too often forget that we must put people first.

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    Senior Member Array Holdcard's Avatar
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    Re-evaluation

    We got a call today that DDD has re-evaluated our situation based on the evidence my wife submitted for the hearing and determined that our charge does in fact have a medical need and all of our hours have been restored.

    Thanks to all who prayed for us.

    Holdcard
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  12. #11
    VIP Member Array Patti's Avatar
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    Good news indeed!
    Socialism is the philosophy of failure, the creed of ignorance and the gospel of envy. Winston Churchill

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    I am glad to hear that this story has a happy ending. May God continue to bless you all!
    God bless our troops!

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    Holdcard,

    Great news! And thank you for caring for this person who would otherwise likely be out in the cold, figuratively speaking.
    He is no fool who gives what he cannot keep to gain what he cannot lose. - Jim Elliott

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    Good new! Glad the system works sometimes. Thank you for caring for those less fortunate than yourself.
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    Senior Member Array Katana's Avatar
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    That's great news!

    I must say, you must be a very strong individual to take on & care for such a special individual. I wish there were more like you in this world, it'd be a better place.
    "Stand your ground, don't fire unless fired upon, but if they mean to have a war, let it begin here!" - John Parker April 19th, 1775 Lexington, MA

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