Please Help Me Cope With A Disease. - Page 2

glock27mark · August 5th, 2009, 05:30 AM

Quote:

Originally Posted by Captain Crunch

I was recently diagnosed as having Ulcerative Colitis. My Doctor is treating the disease with a combination of Asacol, Ameprazole, and Prednesone (a steroid.)

I'm interested in hearing from any member with this disease who would like to share their experience. How are you coping with it, especially any side effects of any medication, and how are you and your Doctor managing the disease? Are you following a particular diet? My Doctor says I can't have any dairy products (milk, cheese, ice cream, etc.) and alcohol in any form (no more pizza and beer,

) but otherwise, I should just follow a "normal" diet.

Thanks in advance for any responses.

my wife has that also. feel free to pm me and she can possibly help.
she's very good in the medical field.

McPatrickClan · August 6th, 2009, 12:46 AM

Sorry about this diagnosis. I believe that God is good and even when things are hard for us, He has a good reason for allowing or causing it to be. Somehow, someway, God is using this for his good purposes.

GP

joker1 · August 6th, 2009, 02:15 AM

My wife had/has Chrohns disease. I think it and UC are related, here's my story.

She was being manly and not going to the doctor but finally succumbed. Long story short... she was diagnosed in late September and followed a no fiber, no residue diet. This meant no corn, nuts, seeds, brocolli, basically things that don't digest down to mush. She followed this until Christmas time when she started having some real bad stomach area pain. She drove herself 150 miles to the specialist (did I mention that she's stubborn) and drank some barium and they did a scan (I don't remember what it was called) and doctor admitted her to hospital for surgery to remove infected portion of small intestine and a large absess. She has a 9 inch vertical scar on her abdomen and that kind of surgery is tough to recover from. A few weeks later she had some pain again, went to ER, drank more barium, scan, ambulance ride to Wichita, but luckily small enough post surgery infection to treat with antibiotics. She's been doing great, they felt like they got all of the diseased portion of the intestine removed and there were no signs of any other problems. The disease is an autoimmune disease, basically your immune system thinks there's a problem and tries to fight it. With my wife the small intestine would get inflamed which would cause a restriction/blockage and after a while a tear, then infection. The disease can come back anywhere from the entrance to the exit, but we're keeping our fingers crossed. That was a very scary time in my life, my wife going into a major surgery like that, wouldn't wish it on anyone.

Captain Crunch, I wish you success in dealing with this damn disease. I hope you are seeing a gastrointestinal specialist and taking advice that they give you. Be strong, eat better, exercise (this helps the meds work better I hear). I'm praying for you and your family.

Joker1

dnowell · August 6th, 2009, 03:19 AM

For other reasons, I ate a very restrictive gluten and wheat free diet for about a year. It was awful for about the first two months, but I actually ended up with a lot more energy and I lost a lot of weight. Good luck!

tbrenke · August 6th, 2009, 04:16 AM

Prednesone is a scary thing. My wife has been on it sence she was 12. she is 44 now. the standard dose for her is 10mG a day. up near the 80-100 she grows a big chip on her sholder and anything can set her off. Luckly that has only been once that the doc has set it that high and only for 2 days.

watch the high doses, they can change your personality.

TX-JB · August 6th, 2009, 06:54 AM

Sorry to hear the news Capt... Can't add much to the discussion, but will add you to my DC prayer list.... Hang in there...

Thanis · August 18th, 2009, 03:24 AM

Hurts this is his last post.

Bark'n · August 18th, 2009, 03:37 AM

Amen to that brother...

Moderators should go ahead and lock this one down.

Bumper · August 18th, 2009, 05:07 AM

Quote:

Originally Posted by Bark'n

Amen to that brother...

Moderators should go ahead and lock this one down.

Agreed.

August 6th, 2009, 04:16 AM	#15
tbrenke Senior Member Join Date: Oct 2008 Location: Arlington, WA Posts: 542	Prednesone is a scary thing. My wife has been on it sence she was 12. she is 44 now. the standard dose for her is 10mG a day. up near the 80-100 she grows a big chip on her sholder and anything can set her off. Luckly that has only been once that the doc has set it that high and only for 2 days. watch the high doses, they can change your personality. __________________ "I cannot undertake to lay my finger on that article of the Constitution, which granted a right to Congress of expending, on objects of benevolence, the money of their constituents." -1792, James Madison There are always too many Democratic, Republican and never enough U.S. congressmen.

August 6th, 2009, 06:54 AM	#16
TX-JB VIP Member Join Date: Sep 2007 Location: Sugar Land, TX Posts: 3,169	Sorry to hear the news Capt... Can't add much to the discussion, but will add you to my DC prayer list.... Hang in there... __________________ *"We're in Texas....Things are different here."* *NRA Life Member*

August 18th, 2009, 03:24 AM	#17
Thanis Distinguished Member Join Date: Aug 2008 Location: MI Posts: 1,704	Hurts this is his last post. __________________ NRA Member S&W 642 (no-lock) with .38 Spl +P 135 GR Gold GDHP Glock G31 & G33 with .357 Sig 125 GR. SXT Winchester Ranger

August 18th, 2009, 03:37 AM	#18
Bark'n VIP Member Join Date: Apr 2007 Location: West Central Missouri Posts: 4,298	Amen to that brother... Moderators should go ahead and lock this one down. __________________ -Bark'n Semper Fi "The gun is the great equalizer... For it is the gun, that allows the meek to repel the monsters; Whom are bigger, stronger and without conscience, will prey on those of us who without one, would surely perish."

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August 6th, 2009, 12:46 AM	#12
McPatrickClan Senior Member Join Date: Aug 2007 Location: East of Ft. Worth, Texas Posts: 532	Sorry about this diagnosis. I believe that God is good and even when things are hard for us, He has a good reason for allowing or causing it to be. Somehow, someway, God is using this for his good purposes. GP

August 6th, 2009, 02:15 AM	#13
joker1 Member Join Date: Jan 2009 Location: Kansas Posts: 354	My wife had/has Chrohns disease. I think it and UC are related, here's my story. She was being manly and not going to the doctor but finally succumbed. Long story short... she was diagnosed in late September and followed a no fiber, no residue diet. This meant no corn, nuts, seeds, brocolli, basically things that don't digest down to mush. She followed this until Christmas time when she started having some real bad stomach area pain. She drove herself 150 miles to the specialist (did I mention that she's stubborn) and drank some barium and they did a scan (I don't remember what it was called) and doctor admitted her to hospital for surgery to remove infected portion of small intestine and a large absess. She has a 9 inch vertical scar on her abdomen and that kind of surgery is tough to recover from. A few weeks later she had some pain again, went to ER, drank more barium, scan, ambulance ride to Wichita, but luckily small enough post surgery infection to treat with antibiotics. She's been doing great, they felt like they got all of the diseased portion of the intestine removed and there were no signs of any other problems. The disease is an autoimmune disease, basically your immune system thinks there's a problem and tries to fight it. With my wife the small intestine would get inflamed which would cause a restriction/blockage and after a while a tear, then infection. The disease can come back anywhere from the entrance to the exit, but we're keeping our fingers crossed. That was a very scary time in my life, my wife going into a major surgery like that, wouldn't wish it on anyone. Captain Crunch, I wish you success in dealing with this damn disease. I hope you are seeing a gastrointestinal specialist and taking advice that they give you. Be strong, eat better, exercise (this helps the meds work better I hear). I'm praying for you and your family. Joker1

August 6th, 2009, 03:19 AM	#14
dnowell Member Join Date: Aug 2007 Location: USA Posts: 462	For other reasons, I ate a very restrictive gluten and wheat free diet for about a year. It was awful for about the first two months, but I actually ended up with a lot more energy and I lost a lot of weight. Good luck!